Rise up

This week Claire decided that she wants to sit up. She started by just kind of lurching forward when she was laying in her lounger. Then the other day she was sitting on me, reclining back on my legs and she pulled herself up. She needs help and once she is sitting she needs support to stay balanced, but it is amazing progress. And the fact that she just started doing it on her own is great, so many times with therapy we're trying to introduce her to positions and have to work to engage her enough so she'll be willing to tolerate it. But she is so happy when she gets to sit up, she looks so pleased with herself. 

She is also not sleeping as much during our walks. She pulls her head up and tries to look around and suck her thumb. It'll be nice when she is stable enough to face forward, she'll be able to see the world. I am so excited that I get to show it to her. 

We heard from CHOP and we scheduled her surgery. I'll write more about that another day, it feels too terrifying to think about more than I already have to. For today I just want to think about how far she has come, how big she has grown, and what an amazing feeling it is when she sees me coming and she smiles.